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The girl with expected lifetime of 13 years!

Joya Korem | Habiganj, Sylhet, Bangladesh, Bangladesh

Organization: Freelance

Nitu is bravely fighting progeria.

Taqlima Jahan Nitu, a 10.5 years old girl is suffering from Progeria, a rare genetic condition. Her father is a day laborer and her mother is a housewife. Her disease was first discovered at the age of 3 months. Her doctor warned her parents that there is no known cure of this disease and most kids with this disease do not live past the age of 13.

Despite her severe illness and pain Nitu is quite a lively girl. Unfortunately, the society could not accept Nitu due to her different look. She is a case of isolation to the society, not a case of disease. Sometimes people brand her as a curse, pass bad comments and pose ill manner towards this little kid and her family. Sometimes people ask by indicating her that what this thing is! Usually she does not go to common places, because curious people surround her and starts alien attitude towards her.

Nitu can understand the negligence towards her and often asks her mother that why the God is not taking her away.

As per the Doctor’s statement her expected lifetime is as little as 13 years. But, this short span of life is full of negligence and insults. We cannot help her by expanding her life span but we can easily help her living a better life. We can be little compassionate and change our point of view towards her. Our little care and attention can let her live her small life meaningfully and leave this earth with some sweet memories.

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