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A Zebra Warrior, Living With Ehlers Danlos Syndrome

Alexandra Krantz | Netherlands

She is a positive zebra warrior,
with no fear about her future.
She has a lot of support from her mother,
they have an amazing relationship living together.

I met Angela at the editorial committee of VED Magazine, where we are both editors. She lives with Ehlers Danlos Syndrome Hypermobile type (h-EDS). Ehlers Danlos Syndrome is a rare and chronic condition also known as “an invisible disease,” because even if you don't have problems walking (without using a wheelchair or crutches) or some prosthesis, from the outside you look just like a normal person. You can't see the pain in their entire body or that they struggle with chronic fatigue and other immune and neurological diseases such as comorbidity. . Angela has a very positive attitude about her life and also takes care of her mental wellbeing, so she can remain positive and balanced, that helps a lot when you are living with a chronic condition. With this portrait she wants to raise more awareness about Ehlers Danlos Syndrome and “the impact EDS has in someone's daily life and what can the people around you do to make your life easier.” The poem about Angela is entitled: A Zebra Warrior .


 

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