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DEFYING THE MYTH
Photographer: Carol Allen Storey
Exhibit Title: DEFYING THE MYTH
Location: United Kingdom
During the Covid-19 lockdown, I conducted weekly Zoom sessions with the families featured in my long-term personal project; ‘Defying the Myth’ which chronicles the daily life of families who create safe and enduring worlds for their progeny living with disabilities. In the Zoom sessions they shared their innermost feelings about managing their challenges during the pandemic and also revealed dark secrets about their past which had never been discussed before.
Parenting and caring for a child with severe disabilities is an immensely complex affair. Parents must become experts in negotiating the endless bureaucracy of public institutions, which demand that they ‘prove’ their need for assistance. During the shutdown, support was minimalised giving rise to added responsibility providing daily care.
In capturing their extraordinary strength, these past 5 years and now during the COVID-19 pandemic this project challenges the myths surrounding disability and parenthood.
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